PERSONAL EXPERIENCES WITH EPILEPSY

One of the most important keys to coping with a personal challenge such as epilepsy is knowing that other people are doing the same. The links on this page lead to stories about the personal experience of people who are doing just that. If you would like to share your own personal experience via this site, please fill out the personal experience form.

Epilepsy in the Eyes of a Friend
This page tells how Sarah Blake learned about epilepsy from a friend who lived with her for a period of time and how epilepsy affected their friendship.

Add or Petit Mal?
This article tells the story of one family's long joutney toward an accurate diagnosis and provides links to additional resources.

Lisa Kiczuk's page
Lisa has been actively educating people about tuberus sclerosis for several years. Her site has a wealth of information about this condition as well as about epilepsy.

The Epilepsy Roller Coaster
This is the story of a young lady's struggle with very severe and uncontrolled complex partial seizures.

Kameron's Story
Here is one mother's story as posted on a neurology Web forum.

My Life with Epilepsy (Graham Todd)
This is the story of an adult who has had epilepsy since infancy.

Our Precious Daughter Amber
This page is a parent's memorial for her daughter who died during a seizure.

Tammy's World
Tammy discusses her own life with epilepsy as well as that of her stepson.

Kayla's story
This page is written from Kayla's point of view. Kayla is an eight-year-old child with epilepsy.

The VNS from a Patient's Point of View
Here is an adult's story about the VNS.

Alison's Page
Alison is an 11-year-old with epilepsy and physical disabilities. This page is a very interesting account of Alison's life and introduction to her interests.

Life on the Edge
This is a great page about a mother's experience with epilepsy and her child's experience with ADD.

Caitie's page
Caitie is an 11-year-old who is active in many activities and who is seeking to find ways to become seizure-free so that she can continue to pursue her interests.

THE HEARTBREAK OF EPILEPSY
This is the story of how one lady struggled with uncontrolled seizures for several years before eventually becoming seizure-free.

Disclaimer

Sarah J. Blake is not a medical professional, and information on this sight should not take the place of face-to-face consultation with medical professionals. The goal of this site is to help people educate themselves about epilepsy and various treatments and alternatives and thus facilitate good communication between patients and doctore.

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